I realize it has been sometime since I have logged into the Blog and done any writing. My only excuse for this is that a break was needed from it. During the wintertime, here in Minnesota it is difficult to keep the awareness going because it is hard to think about swimming in a frozen lake. We are, however starting the next season of Awareness.
There are few things happening that I want to write about and announce here on the blog.
First, we are so excited that a book will be coming out in May of this year. It is called "A Single Swim" and its author is Kristina Circelli. Kristina is the cousin of Courtney Jean Nash, who fell ill and lost the battle against NF August 12, 2011. Together with Courtney's family, Swim Above Water has collaborated on the writing of this book. We are just so proud of this project and very honored and humbled to be a part of it. There are details on our website on how to get the book once it is released.
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Second, Swim Above Water has a new Board of Directors. Visit our web page under "Meet our Team" to see the current board. We are thrilled to add some new members that will certainly have insight and input on our functions and future planning!
http://www.swimabovewater.org/pages/meet-our-team
Third, We are working on another Awareness Rocks event for fall of 2014. It was such a fun event last year and we hope to repeat that this year. Details should come out soon with a Save-the-Date.
Fourth, We will be hosting a Golf Tournament Outing this year. Like the Awareness Rocks, we are getting things up and running and planned with an announcement soon about the details.
Fifth, We were able to make our first (modest) donation to the CDC for research and development surrounding Naegleria Fowleri. This is entirely possible due to the generosity of others. God Bless you all for supporting this cause. It is not easy to get behind something that is deemed to be "rare" and so many of you have stepped up to the plate for this cause. We love you all!
Lastly, we are in talks with a number of sources in MN to speak about awareness for the season. We are working with a Physician from the University of Minnesota who has agreed to speak about awareness for us! Details to come.
I also plan to open up this Blog for other parents, siblings etc. to write their stories. I just know you will fall in love with the stories with these beautiful souls, just as you have Hailee's. I hope to be able to share some very soon.
All for now,
God Bless,
Heidi
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